European Reference Networks (ERNs)
through the network and with health profes- sionals not covered by the ERN. Rare multisystemic vascular diseases include disorders which affect all types of
THE EUROPEAN REFERENCE NETWORKS: A VISION FROM
European Reference Network on Rare Multisystemic Vascular Diseases. Approved ERNs. 24. ERN eUROGEN. European Reference Network on Rare and Complex
eHealth for patients with rare diseases: the eHealth Working Group
The ERN on Rare Multisystemic Vascular Diseases. (VASCERN) addresses complex disorders and conditions that affect different types of vessels and are
Third Programme of the Unions actions in the field of health
rue Henri Huchard 75018 Paris France. HP-ERN-2016 - ERN-01-2016 739529 VASCERN. European Reference Network on rare multisystemic vascular diseases.
European Reference Networks (ERNs)
through the network and with health profes- sionals not covered by the ERN. Rare multisystemic vascular diseases include disorders which affect all types of
Proposal Legal name of beneficiary Adress Amount awarded ERN
ERN Rare Craniofacial Anomalies and ENT Disorders European Rare Kidney Diseases Reference Network ... Multisystemic Vascular Diseases (VASCERN).
The de novo FAIRification process of a registry for vascular anomalies
(EJP RD) further supports registries in implementing the FAIR principles. VASCERN is the ERN focusing on rare multisystemic vascular diseases [20].
Joint Action on integration of ERNs into national health systems
disorders. Endo-ERN. Endocrine Conditions. ERN EpiCARE. Rare and Complex Epilepsies Multisystemic Vascular Diseases ... ?Research on rare diseases.
European Reference Networks (ERNs)
through the network and with health profes- sionals not covered by the ERN. Rare multisystemic vascular diseases include disorders which affect all types of
4. Registries for European Reference Networks (ERNs) - H. Le Borgne
Multisystemic Vascular Diseases ERN EuroBloodNet: 1) non-oncological rare hematological diseases: rare blood cell defect bone.
ERN on multisystemic vascular diseases (VASCERN) - Public Health
VASCERN comprises five Rare Diseases Working Groups: Hereditary Haemorrhagic Telangiectasia (HHT-WG) Heritable Thoracic Aortic Diseases (HTAD-WG) Medium Sized Arteries (vascular Ehlers Danlos Syndrome) (MSA-WG) Paediatric and Primary Lymphedema (PPL-WG) and Vascular Anomalies (VASCA-WG)
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