Gbs communication cards

  • How do you communicate with GBS?

    Many patients with GBS begin to have difficulty communicating verbally because the nerves that control the muscles of speech become affected by the syndrome.
    In severe cases of GBS, a patient may need to use Alternative Augmentative Communication (AAC), for either a short or long-term solution..

  • What are communication cards used for?

    Communication cards contain a set of icons that patients can use if they are having difficulty communicating their immediate needs, wants or concerns.
    Patients, families, clinical staff and the Interpreting service have helped determine the icons that they believe will be the most useful for patients..

  • What do you need on communication cards?

    The Communication Cards cover themes such as:

    Food / Drink / Meals.Personal Care.Feelings / Pain.Religion / Spirituality.Sleep.Mobility Aids.Medical / Health Specialists.TV / Recreation..

  • What is a communication card?

    Communication cards are a way to facilitate communication during community interactions for someone that uses sign language.
    The barista at Starbucks or the bank teller probably doesn't know sign language, so communication cards can be an alternate way to communicate.
    Communication cards should be reciprocal..

  • What is the full form of GBS?

    Guillain-Barré syndrome (GBS) is a rare condition in which a person's immune system attacks the peripheral nerves.
    People of all ages can be affected, but it is more common in adults and in males..

  • What is the idea of GBS?

    Guillain-Barré syndrome (GBS) is a rare but serious post-infectious immune-mediated neuropathy.
    It results from the autoimmune destruction of nerves in the peripheral nervous system causing symptoms such as numbness, tingling, and weakness that can progress to paralysis..

  • What is the use of communication card?

    Communication cards contain a set of icons that patients can use if they are having difficulty communicating their immediate needs, wants or concerns.
    Patients, families, clinical staff and the Interpreting service have helped determine the icons that they believe will be the most useful for patients..

  • Guillain-Barré syndrome (GBS) is a rare condition in which a person's immune system attacks the peripheral nerves.
    People of all ages can be affected, but it is more common in adults and in males.
  • The three phases of GBS are the progressive phase (lasting from days to 4 weeks), a plateau phase with little clinical change (lasting from days to months), and a recovery phase.
    By 7 days, about three quarters of patients will achieve their nadir in neurologic function, and 98% will do so by 4 weeks.
  • What causes GBS? Diarrhea or a respiratory illness: About 2 in every 3 people with GBS had diarrhea or a respiratory illness several weeks before developing GBS symptoms.
    Viral infections: Some people with GBS had the flu or infections with cytomegalovirus, Epstein Barr virus, Zika virus, or other viruses.
Guillain-Barre Syndrome can present a host of complications for daily functioning, particularly regarding communications. Trying to verbally communicate that you are in pain, thirsty, or in need of a blanket can be nearly impossible if a patient is suffering from paralysis or on a ventilator.
Often patients rely on others to speak for them and caregivers struggle to understand the needs that are being communicated by their loved ones. The Communication Cards below are designed to assist both caregivers and patients and depict a wide range of daily activities, concerns and situations.

How do you deal with a GBS patient?

Find a way to communicate

If the patient is on a ventilator, speaking is impossible

Not being able to communicate needs is frustrating

The Foundation has a set of “communication cards” designed by a GBS patient/doctor (contact the Foundation to order the cards)

Other options may be available in the hospital

Listen

What are communication cards?

The Communication Cards below are designed to assist both caregivers and patients and depict a wide range of daily activities, concerns and situations

They can be used to prompt discussion, assist with directions, clarify a patient’s needs, and help lessen the burden of coping with a rare and disabling condition


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