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A Change of Heart

A Change of Heart. A Memoir. Author: Claire Sylvia with William Novak. Reviewed by Jim Gleason heart recipient. This was the very first transplant related 

A Review of

AChange of Heart

A Memoir

Author:Claire Sylvia with William Novak

Reviewed by Jim Gleason, heart recipient

This was the very first transplant related book I ever read way back when it was first published in 1997 and I have to admit even today, in 2008, it still has a very special place in my own transplanted heart.I was surprised to discoverI had not included this in my reviews up to this date.Let me try to explain. Early on after my own transplant, I had come across a passing reference to Claire's amazing experience in a book bynoted author,Deepak Chopra, M.D. In it he mentioned something about Claire's havinghada heart lung transplant andsubsequentdreammemories from her donor. A few years later a friend returned from attending a kaleidoscope convention where she ran across a writer who was putting together a memoir of Claire Sylvia's transplant story and was looking for other heart transplant patients who might support his research into that topic.Coincidently, when this friend encountered William Novak, that author, in a store, they got to talking and she mentioned knowing me, promising to ask if I would be willing when she returned home and saw me. Naturally I was fascinatedand willing, leading to my becoming his "research assistant" on the subject given my heart transplant experience and, with my IT profession, being familiarwith the new Internet as a resource. Through Bill I came to make personal contact with Claire, being very curious to see for myself if she was "for real" with this amazing story. I invited her to be our guest via phone for a local transplant support groupas part of a book discussion on this very interesting topic, later referred to as "cellular memory." We watched my collection of her personal appearances on a few national TV talk shows promoting her book and story and then enjoyed her story telling inperson via phone followed by an open Q&A session. The overall reaction was that she was credible in her story, not trying to sellit, but neither she nor we could explain how any of it was possible. Later, the book was made into a TV movie and would be the subject of an extensive failed search to find a copy when I was building my transplant movie collection. Bill didn't have a copy (nor could he even recall the movie's title). Through him I was able to get in e-mail contact with Claire again, now living retired from her classical dancing career in Florida. She had a copy but was not about to chance loosing it in the mails to me to make a copy for our Transplant Movie Night events, and that's where it remains today, still under negotiation in trying toget a copy and have her again as a guest for our events these 10 years later. Ok, so much for disclosure. Now for the book review itself. This story is a telling of Claire Sylvia's experience following her1988 heart/lung transplant at Yale in New Haven, CN,of a change in personality that she eventually finds and confirms as similar to that of her 18 year olddeceasedmale donor. We read of her dreams in which she learns things about her donor that leads her to make contact with his family, eventuallymeeting with them and finding details of his life preferences in certain foods whichparallel her new post transplant tastesand insights that came in those dreams of him. Thesenew tastes are a direct opposite of her very disciplined eating regimenrequired of hercareer as a classical dancer, and unique enough to raise serious questions as to their source. The personal recollections of the life leading up to transplant and the transplant experience itself make for good reading, but add to that the mystery of such taste changes and dream insights that prove to be true, raise this to a very different level of interesting reading. While I confess to having been fascinated by the reading itself, let me also admit to both using it as a springboard into otheramateur research into that whole topic of traits passed along to the recipient from a donor in organ transplant and as a topic of engaging conversation at any event where the subject comes up. And it does come up often as many people ask me, "So, do youhave any special changes that you feel came along with your heart, Jim?" While I haven't myself, this book is often part of my replies to such questions and I have an attentive audience for as long as I can talk, a very different "life of the party" and ambassador for people becoming organ donors. Despite its being over ten years old, I highly recommend this book for the controversial content and real-life post transplant experience it offers. Some day I hope to also be able to offer insights into how you can see that TV movie of her book, but for now, spend that penny (see book availability below) and see for yourself. PS: Doctors will tell you there is no scientific evidence supporting claims of "cellular memory" or other such experiences, citing the medicines they prescribe post transplant as the root of any changes in taste by the recipient.I had to add that despite the many stories I have read and heard that indicate otherwise. I was pleasantly surprised to find this book still available in both hardcover and paperback versions used for as little as 1 cent (plus S&H) atAmazon.com

Brief bio:

Jim Gleason, receiving his own heart transplant Oct. '94, retiredafter 37 years with Unisys Corporation in 2005, is a volunteer withThe Gift of Life Donor Programin Philadelphia,additionally serving bothNKF and UNOS,as well asbeinga nationally recognized speaker and author. His own book,A Gift from the Heart, isoffered free in thanks to his donor family and can be obtained by contacting him at

GLEASONJIM@AOL.COM.

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