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Copyright
EMPATIA Consortium 2016 - 2017 Page 1 / 395
D 1.5 Social, Ethical and Legal Analysis -
FinalDocument type Report
Deliverable Nº D 1.
5Workpackage WP1
Leading partner CES
Author(s) Michelangelo Secchi
Dissemination level Public
Status Version for final review
Date 31
December 2017
Version 1.0
Ref. Ares(2018)1572127 - 21/03/2018
D1.5 - Social, Ethics and Legal Analysis Final - v.1.0 Copyright EMPATIA Consortium 2016 - 2017 Page 2 / 395List of Authors
Authors Partner
Michelangelo Secchi CES
Tommaso Caldarelli CES
Carlo Milani CES
Kalinca Copello CES
Reviewers & Approval Partner
Simone Julio IN LOCO
Luis Cordeiro
Vitor Fonseca
Bruno Sousa
ONE D1.5 - Social, Ethics and Legal Analysis Final - v.1.0 Copyright EMPATIA Consortium 2016 - 2017 Page 3 / 395Versioning and contribution history
# Description Contributors D1.3 FinalVersion
(Dec 2016)Social, Ethical and legal analysis preliminary
Submitted to the EC on January 2017
Michelangelo Secchi,
Artem Shilaev, Paolo Spada,
Carlo Milani.
0.1 New Summary and definition of the structure of the report
(Starting from Review of D1.3) Michelangelo Secchi0.2 Review of the structure of the report Tommaso Caldarelli
0.3 Added chapter4 Tommaso Caldarelli
0.4 Chapter 4 re edited Tommaso Caldarelli
Michelangelo Secchi
0.5 Chapter 2 and 3 completed Michelangelo Secchi
0.6 Chapter 5 Tommaso Caldarelli,
Michelangelo Secchi
0.8 Review on chapter 2-6 Kalinca Copello
0.9 Added intro, summary and conclusion Michelangelo Secchi
0.99 Rewiews from partners Simone Julio, Luis Cordeiro
1.0 Completed and Added all Annexes Michelangelo Secchi
D1.5 - Social, Ethics and Legal Analysis Final - v.1.0 Copyright EMPATIA Consortium 2016 - 2017 Page 4 / 395Executive Summary
The report includes the final results of the Task 1.3 social, ethical, and legal (SEL) analysis of the
EMPATIA project, and follows the preliminary report (Deliverable D1.3) submitted at the end of the first year of the Action, in December 2016. The main goal of this task has been to analyse and manage the ethical and legal risks and challenges related to the active engagement of individuals during the Action, and in general in any kind of participatory process where digital technologies are used to collect and manage personal data. Accordingly, the scope of the report focuses on two main points: first, the analysis and managementof the social and ethical issues related to the implementation of hybrid participatory processes in the
pilots of EMPATIA, planned and executed during the delivery of the Action; second, the definition of
guidelines and models necessary to future replication and reuse of EMPATIA methods and tools innew contexts, creating enabling condition for amplifying the dissemination and exploitation of
The report includes a significant number of annexes, necessary for a full comprehension of thereport, including a large part of the results of the preliminary analysis delivered during the first year
of the Action, and already published in the previous report D1.3. The annexes also include variousversions of the ethical policies developed and used in pilots during the Action, as well as models for
future reuses of EMPATIA.. D1.5 - Social, Ethics and Legal Analysis Final - v.1.0 Copyright EMPATIA Consortium 2016 - 2017 Page 5 / 395Table of Contents
Executive Summary ......................................................................................................................................... 4
1 Introduction ........................................................................................................................................... 10
1.1 Purpose of the Deliverable ....................................................................................................... 10
1.2 Relation with other Tasks/Deliverable ...................................................................................... 11
1.3 Structure of the Deliverable ...................................................................................................... 11
2 Ethics of EMPATIA ................................................................................................................................ 13
2.1 Ethics of EMPATIA ................................................................................................................... 13
2.1.1 Review of the Ethics Self-Assessment of EMPATIA ................................................................. 14
2.1.2 .................................................................................................... 16
2.2 From principles to policies: ....................................................................................................... 18
2.3 ............................................. 20
3 Background of SEL analysis. .............................................................................................................. 22
3.1 Strategy for Ethical Data Management in EMPATIA ................................................................ 22
3.2 Data Management Plan: Mapping Ethical Risks and Challenges ............................................ 24
3.2.1 High Risk Pilots ....................................................................................................................... 25
3.2.2 Medium Risk Impact Assessment ........................................................................................... 26
3.2.3 Low Risks - Dissemination ......................................................................................................... 27
3.3 Ethical State of the Art of Collaborative Platforms ................................................................... 28
3.4 Social Ethical and Legal Context Analysis ............................................................................... 30
3.5 Ethical guidelines and Policy templates ................................................................................... 31
3.5.1 Privacy Policy Guidelines ........................................................................................................... 31
3.5.2 Terms of Service Guidelines .................................................................................................... 32
3.5.3 Informed Consent Guidelines .................................................................................................... 33
3.6 Adaptations ............................................................................................................................... 34
3.6.1 Policies for Pilots ........................................................................................................................ 34
3.6.2 Policies for Impact Assessment ................................................................................................. 35
3.6.3 Other Policies ............................................................................................................................. 36
4 Pilots: Ethical and Legal Review ......................................................................................................... 39
4.1 Objective of the Chapter ........................................................................................................... 39
4.2 Overview of Legal Framework for Ethical Policies ................................................................... 40
4.3 Methodology for Ethical and Legal review of Pilots .................................................................. 41
4.3.1 Key Issues: Legal responsibilities .............................................................................................. 42
4.3.2 Key Issues: Informed consent.................................................................................................... 42
4.3.3 Key Issues for Terms of Service review .................................................................................... 42
4.3.4 Key Issues for Privacy policy review .......................................................................................... 44
4.3.5 Specific Pilot's Issues................................................................................................................. 45
4.4 Pilot 1 Lisbon: Ethical Review .................................................................................................. 46
4.4.1 Enforceable law framework for Lisbon Pilot ............................................................................... 47
4.4.2 Legal responsibilities for the pilot ............................................................................................... 47
4.4.3 Informed Consent ...................................................................................................................... 48
4.4.4 Terms of Service ........................................................................................................................ 48
4.4.5 Privacy Policy ............................................................................................................................. 52
4.4.6 Lisbon Specific Issues ............................................................................................................... 54
4.5 Pilot 2 Milan: Ethical Review .................................................................................................... 56
4.5.1 Enforceable law framework for Milan Pilot ................................................................................. 56
4.5.2 Legal responsibilities table ......................................................................................................... 56
4.5.3 Informed Consent ...................................................................................................................... 57
D1.5 - Social, Ethics and Legal Analysis Final - v.1.0 Copyright EMPATIA Consortium 2016 - 2017 Page 6 / 3954.5.4 Terms of Service ........................................................................................................................ 57
4.5.5 Privacy Policy ............................................................................................................................. 61
4.5.6 Milan specific issues .................................................................................................................. 64
4.6 ě .................................................................................................. 65
4.6.1 ě .............................................................................. 65
4.6.2 Legal responsibilities table ......................................................................................................... 66
4.6.3 Informed Consent ...................................................................................................................... 66
4.6.4 Terms of Service ........................................................................................................................ 66
4.6.5 Privacy Policy ............................................................................................................................. 70
4.6.6 ě ................................................................................................................ 72
4.7 Pilot 4 Wuppertal: Ethical Review ............................................................................................. 75
4.7.1 Enforceable law framework for Wuppertal Pilot ......................................................................... 77
4.7.2 Legal responsibilities table ......................................................................................................... 77
4.7.3 Informed Consent ...................................................................................................................... 77
4.7.4 Terms of Service ........................................................................................................................ 78
4.7.5 Privacy Policy ............................................................................................................................. 81
4.7.6 Wuppertal specific issues .......................................................................................................... 84
4.8 Lessons from Pilots .................................................................................................................. 84
5 ............................................................................................ 88
5.1 Ethical Principles and Reuse Scenarios for EMPATI ............................................. 88
5.2 The new scenario of GDPR ...................................................................................................... 89
5.2.1 Informed consent assessment ................................................................................................... 91
5.2.2 Layered legal documents ........................................................................................................... 93
5.2.3 Information sheet ....................................................................................................................... 95
5.2.4 Legal documents ........................................................................................................................ 95
5.2.5 Consent as a box ....................................................................................................................... 97
5.2.6 DPO ........................................................................................................................................... 97
5.2.7 Rights, remedies and accountability .......................................................................................... 98
5.2.8 Reprocessing for scientific research purposes ........................................................................ 100
5.3 EMPATIA Ethical Policies Within the Framework of GDPR ................................................... 100
5.3.1 The new Privacy Policy ............................................................................................................ 101
5.3.2 The new Terms of Service ....................................................................................................... 102
5.4 Future Scenario of Use of Ethical Policies of EMPATIA ........................................................ 103
5.4.1 Scenario 1: In-house ................................................................................................................ 104
5.4.2 Scenario 2: Regulation ............................................................................................................. 106
5.4.3 Scenario 3: Cooperation .......................................................................................................... 108
5.4.4 Scenario 4: Externalization ...................................................................................................... 110
5.4.5 Scenario 5: Autonomy .............................................................................................................. 112
6 Data Management for Open Access.................................................................................................. 113
6.1 Open Access Strategy of EMPATIA ....................................................................................... 113
6.2 Open Access in the Data Management Plan ......................................................................... 115
6.2.1 Anonymisation for Impact Assessment .................................................................................... 117
6.2.2 Anonymisation of Data Collected in Pilots ............................................................................... 117
6.3 Guidelines for the Anonymisation ........................................................................................... 119
6.3.1 Models for Anonymised Dataset for Pilots ............................................................................... 121
6.4 Open Access in the Ethical Policies of EMPATIA .................................................................. 123
6.5 Dissemination of Anonymised Data ........................................................................................ 124
7 Conclusions ......................................................................................................................................... 125
D1.5 - Social, Ethics and Legal Analysis Final - v.1.0 Copyright EMPATIA Consortium 2016 - 2017 Page 7 / 395ANNEXES: .................................................................................................................................................... 127
ANNEX A Data Management Plan .......................................................................................................... 128
ANNEX B Context Survey ....................................................................................................................... 178
ANNEX C Context Analysis .................................................................................................................... 181
ANNEX D Platform Analysis (Intro + Questionnaire + Results) ......................................................... 218
ANNEX E Privacy Policy Model .................................................................................................................. 296
ANNEX F ToS Model ................................................................................................................................... 300
ANNEX G Privacy Policy for Impact Assessment & Ethical Approval ............................................... 305
ANNEX H Privacy Policy Adaptation 1 - Lisbon ................................................................................... 309
ANNEX I Terms of Use Adaptation 1 - Lisbon ......................................................................................... 314
ANNEX J Local Agreement 1 - Lisbon ...................................................................................................... 320
ANNEX K Privacy Policy Adaptation 2 - Milan ..................................................................................... 328
ANNEX L Terms of Use Adaptation 2 - Milan ........................................................................................... 332
ANNEX M Local Agreement 2 - Milan .................................................................................................... 338
ANNEX N Privacy Policy Adaptation 3 - Riçany ................................................................................... 343
ANNEX O Terms of Use Adaptation 3 - Riçany .................................................................................... 350
ANNEX P Privacy Policy Adaptation 4 - Wuppertal ............................................................................. 360
ANNEX Q Terms of Use Adaptation 4 - Wuppertal .............................................................................. 364
ANNEX R Local Agreement 4 Wuppertal ........................................................................................... 369
ANNEX S EMPATIA Open Access Strategy .............................................................................................. 370
ANNEX T New Privacy Policy Model ......................................................................................................... 378
ANNEX U New ToS Model ...................................................................................................................... 389
D1.5 - Social, Ethics and Legal Analysis Final - v.1.0 Copyright EMPATIA Consortium 2016 - 2017 Page 8 / 395Figures and Tables
Table 2-1- Policies and Principles Enforced ...................................................................... 19
Table 3-1- High Risk - Pilots .............................................................................................. 26
Table 3-2- Medium Risk Impact Assessment .................................................................. 27
Table 3-3- Low Risks - Dissemination................................................................................ 28
Table 3-4 - Adaptation - Policies for Pilots ......................................................................... 35
Table 3-5 - Adaptation - Policies for Impact Assessment................................................... 36
Table 3-6 Adaptation - Other Policies ............................................................................. 37
Table 3-7 Ethical Risks in Data Management Plan ......................................................... 38
Table 4-1 - Legal Framework for Pilots .............................................................................. 40
Table 6-1- Open Access Dissemination Framework ........................................................ 114
Table 6-2- Open Access in the DMP................................................................................ 116
Table 6-3- Model Public Dataset Participants .................................................................. 121
Table 6-4- Model Public Dataset Processes .................................................................... 122
D1.5 - Social, Ethics and Legal Analysis Final - v.1.0 Copyright EMPATIA Consortium 2016 - 2017 Page 9 / 395Acronyms
Acronyms Description
Action Adaptations
A.CA Consortium Agreement
CES Centro de Estudos Sociais University of Coimbra (Leader of EMPATIA) CML Camara Municipal Lisboa (Municipal Chamber of Lisbon, Portugal)D21 Democracy 21 (Partner of EMPATIA)
D n.nDDI Digital Democratic Innovations
DI Democratic Innovation
DMP Data Management Plan
DoA Description of Action, detailed description of the EMPATIA project annexed to the GA.EC European Commission
GA Grant Agreement
H2020 Horizon 2020
INE Instituto Nacional de Estatística (National Statistical Institute of Portugal)IL IN Loco (Partner of EMPATIA)
IP Intellectual Property (often used also as IPR Intellectual Property Rights) M nn Month (numbered since the beginning of the Action: M01 = Jan 2016) NUTS Nomenclature of Territorial Units for StatisticsOA Open Access
ONE OneSource ltd. (Partner of EMPATIA, Technical Coordinator)PB Participatory Budgeting
PS Partido Socialista Socialist Party, Portugal
SaaS Software as a Service
SEL Social, ethical and Legal (analysis)
T n.n proposal)
UNIMI Università degli Studi di Milano (Partner of EMPATIA) WP n ZLOG ZebraLog (Partners of EMPATIA, Responsible for Pilots) D1.5 - Social, Ethics and Legal Analysis Final - v.1.0 Copyright EMPATIA Consortium 2016 - 2017 Page 10 / 3951 Introduction
This introductory chapter is divided in three sub-chapter. The first includes a definition of the
purposes of this deliverable, the second contains a detailed description of the interaction betweenthis deliverable and other tasks of EMPATIA that feed or are fed by its content; the third includes a
description of the structure of the whole document.1.1 Purpose of the Deliverable
This report includes the final results of the Task dedicated to the social, ethical and legal analysis of
the EMPATIA project. The main goal of this task has been to analyse and manage the ethical and legal risks and challenges related to the active engagement of individuals during the Action, and in general in any kind of participatory process where digital technologies are used to collect and manage personal data.This deliverable foquotesdbs_dbs26.pdfusesText_32
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