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Disabilityand society

Master'sLevelcourse

Anne Revillard

Thinkand write(personalnotes)

? Disability?

How didI end up here?

Whatdo I expectfromthiscourse?

Disability and Society -Anne Revillard

Brainstorming in pairs (in rows)

Introduction (name, pronounyouare comfortablewith

withinthe contextof thisclass, master'sprogramme)

Share whatyouwishto shareof whatyouhave written

Disability and Society -Anne Revillard

Share/Feedback

? Disability?

Expectations

Disability and Society -Anne Revillard

Introduction

The emergenceand developmentof disability

studies

Aimsand scope of the course

Assignments

Disability and Society -Anne Revillard

The emergenceand development

of disabilitystudies Disabilityas part of humandiversity. Estimated15,6% of adultpopulation (WHO, 2011)

Yetdisabilitystudiesas a fieldof inquiryin social

science = relativelynew (1970s-)

Disabilitywasseenas medicalcondition AEparadigm

shift wasneeded(DeJong, 1979)

Connection to the disabilitymovement

Disability and Society -Anne Revillard

The emergenceand development

of disabilitystudies

In the UK (Barnes, Oliver & Barton 2002)

Fundamentalinput of UK research: the social model

Key authors: Vic Finkelstein, Mike Oliver, Paul Abberley,

Colin Barnes, Jenny Morris, Carol Thomas, Tom

First course: Open University1975

Disability and Society -Anne Revillard

The emergenceand development

of disabilitystudies

In the UK (Barnes, Oliver & Barton

2002)

First journal: Disability, handicap and

society createdby Len Barton and

Mike Oliver in 1986 (became

Disabilityand society in 1993)

Leeds Centre for disabilitystudies

A milestone: Mike Oliǀer'sThe

politicsof disablement1990

Disability and Society -Anne Revillard

Whythispersonaccessthe polling station?

Disability and Society -Anne Revillard

Whythispersonaccessthe polling station?

Medical

model

Social

model

Disability and Society -Anne Revillard

The emergenceand development

of disabilitystudies

In the US (Barnes et al., 2002)

Easieracceptancein academicdepartments: First course

1977 AE23 courses in the US in 1986

Key authors: Irving Zola, GerbenDeJong, Harlan Hahn,

1981 Irving Zola foundedthe Disabilitystudiesquarterly

and co-foundedthe Society for disabilitystudies

Disability and Society -Anne Revillard

The emergenceand development

of disabilitystudies

Common elementsin the waydisabilitystudies

developedin the US and in the UK: -Initial connectionto social movements -Paradigmshift -Interdisciplinarity

Disability and Society -Anne Revillard

The emergenceand development

of disabilitystudies

Yetdifferentorientations (Meekosha, 2004):

-UK: a more materialistperspective, dominance of sociology (Barnes & Mercer, 2010; Oliver & Barnes, 2012; Swain, French, Barnes, & Thomas, 2013; Watson, Roulstone, &

Thomas, 2012)

-US: more focus on discourseanalysisand cultural representationsof disabilityAEcultural disabilitystudies (Garland-Thomson, 1997; Davis, 2013)

Disability and Society -Anne Revillard

GARLAND-THOMSONR., 1997, Extraordinary

Bodies: Figuring Physical Disability in American

Culture and Literature, New York, Columbia

University Press.

OLIVERM., 1990, The politics of

disablement, Basingstoke, Macmillan.

Disability and Society -Anne Revillard

͞Disability -similar to race and

gender -is a system of representation that marks bodies as subordinate, rather than an essential property of bodies that supposedly have something wrong with them" (Garland-Thomson, 2005, p.1557- 1558)

Disability = ͞the disadǀantage or

restriction of activity caused by a contemporary social organisation which takes no or little account of people who have physical impairments and thus excludes them from participation in the mainstream of social actiǀities" (Union of the Physically Impaired

Against Segregation, 1976)

Disability and Society -Anne Revillard

AECompare these2 definitionsof disability: how do theydiffer? And yet, what do theyhave in common?

The emergenceand development

of disabilitystudies Main reasonsfor divergingUS/UK orientations in disability studies: -Differenttheoreticaltraditions in social science -Differentdisciplines -Differentformsof activism/social movementframing (oppression/identitypolitics)

Disability and Society -Anne Revillard

The emergenceand development

of disabilitystudies Disabilityresearchin French social science (Ville & Ravaud2007): -More recentdevelopment, but veryactive fieldof research -Institut fédératif de recherches sur le handicap createdin 1995 -Programme handicaps et sociétés (PHS), createdat the Ecole des hautes études en sciences sociales(EHESS) in 2006 -ALTER Association and journal (Europeanjournal of disability research) -Lessconnectedto activism -Researchlessoftenconductedby disabledresearchers

Disability and Society -Anne Revillard

Thinkingabout disabilitybeyonddisability

studies: the needfor disabilitymainstreaming

AEWhatisdisabilitymainstreaming?

Disability and Society -Anne Revillard

Disabilitymainstreaming

When, whereand how have youheardabout

disabilityin yourclassroomssofar?

In course content?

Disabledteachers/students?

Disability and Society -Anne Revillard

Disabilitymainstreamingin social science:

muchneededand stilllagging

Needfor mainstreaming

-Disabilityas cross-cuttingissue -Disabilityand concept transformation Obstacles to mainstreamingin academia: triple stigma of disabilityin social science Persistenceof the medicalmodel (cfOliver & Barnes, 2012) An effectof the stigmatizationof disabledpeople themselves

An effectof the yetmarginal presenceand visibilityof disabledpeople in academia(no criticalmass effect)

Activistknowledge

Disability and Society -Anne Revillard

Aimsand scope of the course

AEAn interdisciplinaryapproach: sociology, politicalscience, history, law, philosophy, cultural studies AETheoreticaltools: disabilitydefinitions, policymodels, constructionismand embodiement, intersectionalityand AERevisitcommonthemesof social science : education,

Disability and Society -Anne Revillard

Aimsand scope of the course

AEFocus on the everydayexperiencesof disabledpeople AEComparative perspective withinthe western world (US, UK, AEThe political underpinnings and implications of disability research

AEInitial connections to activism

AEPolicy implications

AEInterplay between politics, policy and the production of knowledge

Disability and Society -Anne Revillard

Course outline

1.Introduction

2.The disability movement

3.The social model and its critiques

4.From disability to disabilities

5.Disability policies at the crossroads

6.Global disability rights

7.Education

8.Employment

9.Care

10.Cultural representations

11.Undoing stigma

12.Conclusion

Disability and Society -Anne Revillard

Assignments(check syllabus for details)

Individual assignments (60% of final grade):

-Reading assignments 30% [DDL Sept. 15th and Sept. 29th ] -͞Takeaway from Disability & Society" note͗ 30% [DDL

12/09] [DDL Dec. 9th]

Group assignments (40% of final grade):

-In-class presentation OR online summary [to be sent to teachers 48h before class]: 30% -In-class discussion of another presentation: 10%

Disability and Society -Anne Revillard

References

Barnes, C. (2007). Disability, Higher Education and the Inclusive Society. British Journal of Sociology of Education, 28(1), 135-

145.
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