[PDF] EVIDENCE-BASED PRACTICES FOR INDIVIDUALS WITH AUTISM SPECTRUM



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REPORT OF THE ONTARIO

SCIENTIFIC EXPERT TASKFORCE

FOR THE TREATMENT OF

AUTISM SPECTRUM DISORDER

April 2017

EVIDENCE-BASED PRACTICES

FOR INDIVIDUALS WITH

AUTISM SPECTRUM DISORDER:

Recommendations for

Caregivers, Practitioners,

and Policy Makers

ONTABA EXPERT REPORT |

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Dear Reader,

In the summer of 2016, in response to intense public debate regarding the existing research evidence and best practices for the treatment of autism spectrum disorder (ASD), the Ontario Association for Behaviour Analysis (ONTABA) formed the Ontario Scientific Expert Task Force for the Treatment of Autism Spectrum Disorder (OSETT-ASD). Drawing upon the organization's membership, we assembled a group of behaviour analysts with prominent research and practice expertise. Over the next several months, the Task Force worked diligently to evaluate the current state of evidence that exists for this population in order to answer pertinent questions being posed by caregivers, advocates, policy makers, and practitioners across the province. We hope that this report will serve as a guide in the development of policy and practices in Ontario that are evidence based and result in the best possible outcomes for individuals with ASD and their loved ones. ONTABA would like to thank the many contributors to this report, including the Task Force members, the external reviewers, the subcommittee members, the ONTABA Board of Directors, and the research assistants and volunteers that made it possible. This report is dedicated to our closest partners - the individuals, families, and caregivers to whom this work is of the utmost importance.

Sincerely,

Louis Busch, BST, M.Ed., BCaBA

President, ONTABAJulie Koudys, Ph.D., C.Psych., BCBA-DChair, OSETT-ASD

Table of Contents

ONTABA EXPERT REPORT |

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TABLE OF CONTENTS

Executive Summary

4 Task Force Members, Reviewers, and Research Assistants 6

1. Introduction and Purpose

7

2. Background and Key Concepts

13

3. Scientific Evidence Review and Synthesis

27

4. Practice Guidelines for the Treatment of Autism Spectrum Disorder

74

5. Recommendations

93

References

103

Appendix A. Committee Member Biographies

111

Appendix B. Misconceptions about ABA

113

Appendix C. Glossary of Terms

116

Appendix D. Definitions of Intervention Methods

123
Appendix E. Definitions of Intervention Target Domains 132

Executive Summary

ONTABA EXPERT REPORT |

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EXECUTIVE SUMMARY

Over its 24 years of existence, the Ontario Association for Behaviour Analysis (ONTABA) has developed

into the single largest organization representing behaviour analysts in Canada. During this time, ONTABA

has forged partnerships with families, government, and other organizations to advocate for improvements

in the accessibility and quality of behaviour analytic services for those in need. As a logical extension

of this role, ONTABA identified the need to produce a comprehensive examination of evidence-based

practices and to make recommendations for the provision of behaviour analytical services to individuals

with ASD in Ontario. This undertaking reflects ONTABA's ongoing commitment to individuals with ASD based on the best available evidence.

families over the last several decades, the number of children with ASD in Ontario waiting for behaviour

analytic services has increased. In March of 2016, the Ontario government announced that a new Ontario

Autism Program would be available in June 2017. In response, ONTABA formed the Ontario Scientific Expert Taskforce for the Treatment of Autism Spectrum Disorder (OSETT-ASD) to examine the research and to provide recommendations based on a synthesis of these information sources.

Our expert task force began its process of developing this report by first identifying critical questions

What interventions should be supported for individuals with ASD? For what individuals, at what ages, should these interventions be made available? Who should supervise and who should deliver these services? How much service should be delivered, and for how long? services for each individual? First, we identified a transparent and objective process for examining the research literature and accepted practice guidelines. Next, we used expert consensus as the basis for making our recommendations. Through this process, we identified two recent comprehensive research reports

which used rigorous selection criteria for the identification of evidence-based practices for children

with ASD, one published by the National Autism Center in 2015 and the other by the National Professional Development Center in 2014. We also identified four ABA practice guidelines by three large professional organizations (Association for Behavior Analysis International, the California Association for Behavior Analysis, and the Minnesota Association for Behavior Analysis) and one international credentialing body (the Behavior Analyst Certification Board). These sources formed the basis for the conclusions about evidence-based practices for individuals

Executive Summary

ONTABA EXPERT REPORT |

5 with ASD and how behaviour analytic services should be delivered. This process is consistent with commonly accepted definitions of evidence-based practice which integrate the best available

evidence with clinical expertise and client values and context (Slocum et al., 2014). It was clear from

the comprehensive reports, which considered over 38,000 studies and systematically reviewed more than 2000, that almost all the interventions for ASD determined to be evidence-based were either behaviour analytic interventions or included components derived from behaviour analytic principles. These evidence-based interventions are divided into comprehensive and focused ABA interventions. Comprehensive ABA interventions address multiple targets across developmental domains and typically require a high number of hours of service per week. Focused ABA interventions address one or few targets and typically involve fewer hours of service. Twenty-six recommendations and a brief commentary for each are provided to address the five questions outlined above. The report and its recommendations include input from some of the most

prominent behaviour analysts in the field, the consensus of the OSETT-ASD committee, and ratification

by the ONTABA Board of Directors. It is the most comprehensive examination of the research of evidence-

Our recommendations are based on the following foundational beliefs: lifespan. ABA is the principal evidence-based approach for individuals with ASD. unqualified practitioners. Individuals with ASD receiving services and their families should be partners in decision-making when considering behaviour analytic interventions. The targets, design, and implementation of behaviour analytic interventions should be individualized to the needs of the individual with ASD. The amount of treatment and settings of behaviour analytic interventions should be selected to maximize outcomes for the individual with ASD. Goals of treatment should be set in advance, defined in measurable terms, and evaluated by direct and repeated measurement. Data collection systems should be customized to the needs of each unique individual. These data must be applied in the clinical decision-making process. No one organization has the ability to bring about and sustain the supports needed to significantly what is needed for the treatment of individuals with ASD. ONTABA remains committed to working with Task Force Members, Reviewers, and Research Assistants

ONTABA EXPERT REPORT |

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TASK FORCE MEMBERS, REVIEWERS,

AND RESEARCH ASSISTANTS

MEMBERS OF THE ONTARIO SCIENTIFIC EXPERT TASK FORCE: Julie Koudys, Ph.D., C.Psych., BCBA-D, Brock University (Chair) Joel Hundert, Ph.D., C.Psych., BCBA-D, Behaviour Innovations, McMaster University Nancy Marchese, M.A., C.Psych., BCBA, Breakthrough Autism Adrienne Perry, Ph.D., C.Psych., BCBA-D, York University Stasia Rossinsky, M.ADS, BCBA, Surrey Place Centre Kimberley Zonneveld, Ph.D., BCBA-D, Brock University For brief biographical sketches of Expert Panel members, please see

Appendix A

EXTERNAL REVIEWERS

William Ahearn Ph.D., BCBA-D, LABA, Western New England University James Carr, Ph.D., BCBA-D, Behavior Analyst Certification Board Maurice Feldman, Ph.D., C. Psych, BCBA-D, Brock University Gina Green, Ph.D., BCBA-D, Association of Professional Behavior Analysts

Eric V. Larsson, Ph.D., LP, BCBA-D, The Lovaas Institute for Early Intervention, University of Minnesota

OSETT-ASD SUBCOMMITTEE MEMBERS:

Ksusha Blacklock, Ph.D., C. Psych. (Supervised Practice), Holland Bloorview Kids Rehabilitation Hospital

Milena Kako, M.ADS, BCBA, Centre for Addiction and Mental Health Melissa Legree, M.ADS, BCBA, Lake Ridge Community Support Services

Tricia Vause, Ph.D., BCBA-D, Brock University

RESEARCH ASSISTANTS

Hilda Ho M.A., M.P.H.

Jacqueline Pachis, M.A.

Krysten Thompson, B.A.

Introduction and Purpose

ONTABA EXPERT REPORT |

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1. INTRODUCTION AND PURPOSE

Since 1994, the Ontario Association for Behaviour Analysis (ONTABA) has worked to foster a culture of excellence, integrity, and expertise for the advancement and promotion of the science of behaviour analysis in Ontario. ONTABA is the largest professional organization representing behaviour analysts

for practitioners and recipients of behaviour analytic services, a respected community partner, and a

dedicated advocate for individuals in need of life-changing behaviour analytic services.

Behaviour analysis is a scientific discipline whose subject matter is individual behaviour interacting

with environmental events. Like other scientific disciplines, behaviour analysis has theoretical, experimental, and applied branches, journals, scholarly and professional organizations, university training programs, and professional credentials. The applied branch of the discipline (applied and applied research to improve socially significant behaviour to a meaningful degree. The defining features of ABA have been well-specified since 1968 (Baer, Wolf, & Risley, 1968). They are: Applied - addresses behaviours that are socially significant for the client and his/her significant others. Behavioural - focuses on the client behaviour(s) in need of improvement and measures those directly. Analytical - consistently produces change in a measured aspect of the target behaviour(s) when the intervention is in place vs. when it is not. reader has a reasonable chance of replicating the intervention. Conceptually systematic - grounded in the conceptualization that behaviour is a function of environmental events and described in terms of behaviour analytic principles. degree. Generalization - produces changes in target behaviours that last over time, occur in situations other than those in which the interventions were implemented initially, and/or spread to behaviours that were not treated directly. Thousands of studies published in peer-reviewed scientific journals have demonstrated the skills and reducing problem behaviours in many clinical and non-clinical

ONTABA has served

as a resource for practitioners and recipients of be- haviour analytic services, a respect- ed community partner, and a ded icated advocate for individuals in need of life-changing behaviour analyticquotesdbs_dbs21.pdfusesText_27