Jan 24, 2020Treatment decision making (TDM) is complex due to the varying decisions which have to be made about diagnosis, treatment options, toxicity,
This is called shared decision making. It ensures that you and your doctor are making treatment and healthcare decisions together. This process empowers you to make decisions that are right for you. Talk to your doctor or healthcare professional about the most appropriate shared decision-making tools for you.
Partnership in Research
Health research landscape is increasingly changing.
Researchers historically considered themselves as “gatekeepers” as they decide the objectives of their works and how to measure the reliability of their data; moreover, usually the results are shown and discussed on scientific papers and during conferences exclusively dedicated to healthcare profe.
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Patient Education
Patients' education can be considered as one of main principles behind patients' empowerment, both in terms of knowledge and awareness on the disease and in terms of rights and responsibility that the patient has in the care process (52).
Besides the many initiatives that are already ongoing at European and National level (53), the high need of pat.
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Patient-Clinician Communication
Communication between the healthcare professional and the patient is a complex and interactive process.
Thanks to an interactive communication, doctors and patients can share precious details regarding a medical history, co-identify signs and symptoms necessary for a correct diagnosis and share decisions on treatments based on the assessment of the.
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Self-Management
The concept of self-management in the process of empowering patients arises from two main unmet needs: the health care system's difficulty in sustaining the efforts and costs of dealing with chronic conditions and rare diseases, and patients' need to develop a higher self-awareness of their condition.
A successful process of self-management is comp.
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Sharing of The Therapeutic Decision-Making Process
Current evidence shows that adherence to therapy is usually higher in patients directly involved in the therapeutic decision-making process and, consequently, so is their outcome.
In particular, lack of information concerning potential risks and benefits of the therapeutic options and inadequate communication between physicians and patients are som.
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Should clinicians engage patients in decision-making during in-person visits?
Traditionally, clinicians engage patients in decision-making during in-person visits.
This may work well for major decisions, which occur infrequently, have obvious consequences, and may be amenable to clinicians and patients meeting on several occasions to make the decision.
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The Role of Caregivers
Caregivers can be defined as “a person who gives care to people who need help taking care of themselves” (45), thus including parents, partners, friends, members of the family or healthcare professionals.
To date, little attention has been given to the role that caregivers play in rare diseases and even less attention to their empowerment.
Besides .
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What are the key elements of treatment decision-making?
monitor response to therapy. incorporate the patient in therapeutic decision-making, explaining the risks and benefits of treatment. respect patient’s informed choices, including:
- the right to refuse treatment
incorporate the elements of
patient autonomy, treatment efficacy, quality of life, and societal demands into decision-making.
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What is medical decision making?
(See also Overview of Medical Decision Making and The Science of Medicine .) In earlier days of medical care, doctors often made decisions for their patients without their input and without explaining the risks and benefits of all available treatments.
This approach has been recognized as inappropriate.
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Why is participation in the therapeutic decision-making process important?
Considering also the complexity of the therapeutic management of BS, that often includes ,biological off-label treatments, the participation in the therapeutic decision-making process of the BS patients is essential to ensure the integration of the care process into the life of the patient.
