Privacy of genetic information Ownership of genetic information (patenting) Genetic modification of bacteria, plants, animals, or humans Genetic modification of food Gene therapy Genetic testing issues Personal responsibility and genetic determinism (how much is your behavior due to your genes?).
Ethics and genetics research topics
There are a few ethical dilemmas that cause people concern. Being able to actually procure the information that lies in the DNA's structure could result in people being discriminated against for a job or insurance coverage. Another issue that causes controversy is the prospect of selection of fetuses during pregnancy..
Ethics and genetics research topics
Typically, bioethicists concentrate on determining whether the existing protection of human subjects in genetic studies is adequate, instead of whether research data will be compromised if stronger protective guidelines are implemented (Reilly et al., 1997; Wilcox et al., 1999)..
What are the bioethical concerns of genetic testing?
In a large number of instances, when patients receive the results of genetic tests, they are party to information that directly concerns their biologic relatives as well. This familial quality of genetic information raises ethical quandaries for physicians, particularly related to their duty of confidentiality..
What are the bioethical principles in medical genetics?
The basic principles to be followed are indicated in Table 1. They are the following: respect for autonomy, non-maleficence, beneficence, and justice. Autonomy means the duty to respect the self-determination of competent persons and to protect those with diminished capacities..
What are the ethical considerations of genetics?
There are a few ethical dilemmas that cause people concern. Being able to actually procure the information that lies in the DNA's structure could result in people being discriminated against for a job or insurance coverage. Another issue that causes controversy is the prospect of selection of fetuses during pregnancy..
Germline gene therapy raises difficult ethical questions related to tampering with human nature, enhancing human traits, parental control over children, discrimination, social justice and eugenics.
Bioethics in Genetics. By: Danielle Simmons, Ph.D. (Write Science Right) Based on the above scenario, it seems that genetic testing for diseases that
The Human Genome Project
Meghan's problem foreshadows the dilemmas many people will face as scientists learn more about genetics. In 1990, an international effort was launched to decode the language of our genes—the Human Genome Project (HGP). The United States is investing $3 billion over 15 years in this endeavor to map the complete set of genes for humans-the human geno.
Bioethics genetic diseases
Type of inflammatory bowel disease
Crohn's disease is a type of inflammatory bowel disease (IBD) that may affect any segment of the gastrointestinal tract. Symptoms often include abdominal pain, diarrhea, fever, abdominal distension, and weight loss. Complications outside of the gastrointestinal tract may include anemia, skin rashes, arthritis, inflammation of the eye, and fatigue. The skin rashes may be due to infections as well as pyoderma gangrenosum or erythema nodosum. Bowel obstruction may occur as a complication of chronic inflammation, and those with the disease are at greater risk of colon cancer and small bowel cancer.
Group of autosomal recessive genetic disorders that affect Finns much more frequently
A Finnish heritage disease is a genetic disease or disorder that is significantly more common in people whose ancestors were ethnic Finns, natives of Finland and Northern Sweden (Meänmaa) and Northwest Russia. There are 36 rare diseases regarded as Finnish heritage diseases. The diseases are not restricted to Finns; they are genetic diseases with far wider distribution in the world, but due to founder effects and genetic isolation they are more common in Finns.
Huntington's disease (HD)
Inherited neurodegenerative disorder
Huntington's disease (HD), also known as Huntington's chorea, is an incurable neurodegenerative disease that is mostly inherited. The earliest symptoms are often subtle problems with mood or mental/psychiatric abilities. A general lack of coordination and an unsteady gait often follow. It is also a basal ganglia disease causing a hyperkinetic movement disorder known as chorea. As the disease advances, uncoordinated, involuntary body movements of chorea become more apparent. Physical abilities gradually worsen until coordinated movement becomes difficult and the person is unable to talk. Mental abilities generally decline into dementia, depression, apathy, and impulsivity at times. The specific symptoms vary somewhat between people. Symptoms usually begin between 30 and 50 years of age, and can start at any age but are usually seen around the age of 40. The disease may develop earlier in each successive generation. About eight percent of cases start before the age of 20 years, and are known as juvenile HD, which typically present with the slow movement symptoms of Parkinson's disease rather than those of chorea.
Crohn's disease is a type of inflammatory bowel disease (IBD)
Type of inflammatory bowel disease
Crohn's disease is a type of inflammatory bowel disease (IBD) that may affect any segment of the gastrointestinal tract. Symptoms often include abdominal pain, diarrhea, fever, abdominal distension, and weight loss. Complications outside of the gastrointestinal tract may include anemia, skin rashes, arthritis, inflammation of the eye, and fatigue. The skin rashes may be due to infections as well as pyoderma gangrenosum or erythema nodosum. Bowel obstruction may occur as a complication of chronic inflammation, and those with the disease are at greater risk of colon cancer and small bowel cancer.
Group of autosomal recessive genetic disorders that affect Finns much more frequently
A Finnish heritage disease is a genetic disease or disorder that is significantly more common in people whose ancestors were ethnic Finns, natives of Finland and Northern Sweden (Meänmaa) and Northwest Russia. There are 36 rare diseases regarded as Finnish heritage diseases. The diseases are not restricted to Finns; they are genetic diseases with far wider distribution in the world, but due to founder effects and genetic isolation they are more common in Finns.
Huntington's disease (HD)
Inherited neurodegenerative disorder
Huntington's disease (HD), also known as Huntington's chorea, is an incurable neurodegenerative disease that is mostly inherited. The earliest symptoms are often subtle problems with mood or mental/psychiatric abilities. A general lack of coordination and an unsteady gait often follow. It is also a basal ganglia disease causing a hyperkinetic movement disorder known as chorea. As the disease advances, uncoordinated, involuntary body movements of chorea become more apparent. Physical abilities gradually worsen until coordinated movement becomes difficult and the person is unable to talk. Mental abilities generally decline into dementia, depression, apathy, and impulsivity at times. The specific symptoms vary somewhat between people. Symptoms usually begin between 30 and 50 years of age, and can start at any age but are usually seen around the age of 40. The disease may develop earlier in each successive generation. About eight percent of cases start before the age of 20 years, and are known as juvenile HD, which typically present with the slow movement symptoms of Parkinson's disease rather than those of chorea.
