[PDF] Catalogue 2017_310717_Final version (2) (db) (JA) (AH) (2)

View - Download Catalogue 2017_310717_Final version (2) (db) (JA) (AH) (2)

Previous PDF

Next PDF

NATIONAL DATA COLLECTIONS

OF HEALTH AND SOCIAL CARE

CATALOGUE

Version 4.0Version 4.0

Catalogue of national health and social care data collections in Ireland

Health Information and Quality Authority

Page 2 of 362

Catalogue of national health and social care data collections in Ireland

Health Information and Quality Authority

Page 3 of 362

About the Health Information and Quality Authority (HIQA) The Health Information and Quality Authority (HIQA) is an independent statutory authority established to promote safety and quality in the provision of health and social care services for the benefit of the health and welfare of the public. sector services. Reporting to the Minister for Health and engaging with the Minister for Children, Equality, Disability, Integration and Youth, HIQA has responsibility for the following: ƒ Setting standards for health and social care services ² Developing person-centred standards and guidance, based on evidence and international best practice, for health and social care services in Ireland. ƒ Regulating social care services ² The Chief Inspector within HIQA is responsible for registering and inspecting residential services for older people ƒ Regulating health services ² Regulating medical exposure to ionising radiation. ƒ Monitoring services ² Monitoring the safety and quality of health services about the health and welfare of people who use these services. ƒ Health technology assessment ² Evaluating the clinical and cost- effectiveness of health programmes, policies, medicines, medical equipment, diagnostic and surgical techniques, health promotion and protection activities, and providing advice to enable the best use of resources and the best outcomes for people who use our health service. ƒ Health information ² Advising on the efficient and secure collection and sharing of health information, setting standards, evaluating information resources and publishing information on the delivery and performance of ƒ National Care Experience Programme ² Carrying out national service- user experience surveys across a range of health services, in conjunction with the Department of Health and the HSE. Catalogue of national health and social care data collections in Ireland

Health Information and Quality Authority

Page 4 of 362

Overview of the Health Information Function

Health is information-intensive, generating huge volumes of data every day. Health and social care workers spend a significant amount of their time handling information, collecting it, looking for it and storing it. It is, therefore, very important that information is managed in the most effective way possible in order to ensure a high-quality safe service. Safe, reliable healthcare depends on access to, and the use of, information that is accurate, valid, reliable, timely, relevant, legible and complete. For example, when giving a patient a drug, a nurse needs to be sure that they are administering the appropriate dose of the correct drug to the right patient and that the patient is not allergic to it. Similarly, lack of up-to-date information can lead to the unnecessary duplication of tests ² if critical diagnostic results are missing or overlooked, tests have to be repeated unnecessarily and, at best, appropriate treatment is delayed or at worst not given. In addition, health information has an important role to play in healthcare planning decisions ² where to locate a new service, whether or not to introduce a new national screening programme and decisions on best value for money in health and social care provision. Under Section (8)(1)(k) of the Health Act 2007, (1) the Health Information and Quality Authority (HIQA) has responsibility for setting standards for all aspects of health information and monitoring compliance with those standards. In addition, under Section 8(1)(j), HIQA is charged with evaluating the quality of the information available on health and social care and making recommendations in relation to improving its quality and filling in gaps where information is needed but is not currently available. Information and communications technology (ICT) has a critical role to play in ensuring that information to promote quality and safety in health and social care settings is available when, and where, it is required. For example, it can generate alerts in the event that a patient is prescribed medication to which they are allergic. Further to this, it can support a much faster, more reliable and safer referral system Although there are a number of examples of good practice, the current ICT infrastructure in health and social care services in Ireland is highly fragmented with major gaps and silos of information. This results in individuals being asked to provide the same information on multiple occasions. In Ireland, information can be lost, documentation is poor, and there is an overreliance on memory. Equally, those responsible for planning our services Catalogue of national health and social care data collections in Ireland

Health Information and Quality Authority

Page 5 of 362

experience great difficulty in bringing together information in order to make informed decisions. Variability in practice leads to variability in outcomes and cost of care. Furthermore, we are all being encouraged to take more responsibility for our own health and wellbeing, yet it can be very difficult to find consistent, understandable and trustworthy information on which to base our decisions. As a result of these deficiencies, there is a clear and pressing need to develop a coherent and integrated approach to health information in Ireland, based on standards and international best practice. A robust health information environment will allow all stakeholders ² patients and service users, health professionals, policy- makers and the general public ² to make choices or decisions based on the best available information. This is a fundamental requirement for a highly reliable healthcare system. Through its health information function, HIQA is addressing these issues and working to ensure that high-quality health and social care information is available to support the delivery, planning and monitoring of services. Catalogue of national health and social care data collections in Ireland

Health Information and Quality Authority

Page 6 of 362

Table of Contents

About the Health Information and Quality Authority (HIQA) 3

Overview of the Health Information Function 4

Table of Contents 6

Acknowledgments 7

Definitions 8

Part 1. Introduction 10

1 Background 11

2 Methodology 14

3 Summary analysis of national health and social care data collections within this

catalogue 24 Part 2. National health and social care data collections in Ireland 25

4 National health and social care data collections in Ireland 26

5 Data collections with regional coverage 232

6 National censuses 250

7 National surveys 257

Part 3. Collated sources of health and social care information 286

8 National performance and activity reports 287

9 Additional collated sources of health information 317

10 References 346

11 Glossary of abbreviations 349

12 Index 360

Catalogue of national health and social care data collections in Ireland

Health Information and Quality Authority

Page 7 of 362

Acknowledgments

The Health Information and Quality Authority would like to sincerely thank all organisations who assisted in compiling this fourth version of the Catalogue of National Health and Social Care Data Collections through completion of metadata templates to describe their national data collections. Catalogue of national health and social care data collections in Ireland

Health Information and Quality Authority

Page 8 of 362

Definitions

The following list provides an explanation of words and terms that have a particular meaning in the context of this document. Census: a procedure of systematically acquiring and recording information about the members of a given population. Clinical coding scheme: a comprehensive system which allows the recording, in a standardised manner, of all events or concepts that are found in a healthcare record. This allows comparison of events within and between records. Data: the building blocks for information. It has been described as numbers, symbols, words, images and graphics that have been validated but yet to be organised or analysed. Data dictionary: a descriptive list of names (also called representations or displays), definitions and attributes of data elements to be collected in an information system or database. The purpose of the data dictionary is to standardise definitions and ensure consistency of use. It is a tool to aid in the standardisation of data definitions. Data provider: any person, organisation, or part of an organisation contributing data to the national health or social care data collection, for example, a hospital, general practitioner (GP) or laboratory. Data quality framework: a document which outlines the approaches to systematically assess, document and improve data quality and includes data quality policies and procedures; key performance indicators and metrics; audits; and improvement initiatives. Data quality statement: a statement prepared to accompany all published outputs from the national health and social care data collection which highlights the dimensions of data quality, including strengths and weaknesses, so that potential data users can make informed judgments about fitness for use. Data user: any stakeholder who uses data held by a health or social care organisation or any information outputs from the organisation. Dataset: a dataset (or data set) is the data that is collected by the information collections. The data is usually presented in tabular form. Disease classification system: a system for the standardised recording of different diseases. It allows for the translation of the words used for diagnoses, procedures and other medical problems into codes. This permits standardised Catalogue of national health and social care data collections in Ireland

Health Information and Quality Authority

Page 9 of 362

recording, interpretation and comparison of data within and between healthcare organisations. Equity stratifiers: Variables selected to reflect perceived inequalities in the population that is the subject of data collection, for example, place of residence, gender and religion.(1) Health information: health information is defined as information, recorded in any form, which is created or communicated by an organisation or individual relating to the past, present or future physical or mental health or social care of an individual or group of individuals (also referred to as a cohort). Health information also includes information relating to the management of the health and social care system. Information: information is data that has been processed or analysed to produce something useful. Managing organisation: the organisation, agency, managing unit, institution or group with overall responsibility for the national health and social care data collection. The term describes the variety of arrangements which are in place for a responsible body to govern, manage and organise national health and social care data collections in Ireland. This may not always be a formalised organisation or a body established on a statutory basis. Metadata: metadata provides summary information in a structured way about the content of a resource such as a report, a book or a dataset. It can be defined as 'data to explain data'. National health and social care data collections: national repositories of routinely collected health and social care data, including administrative sources, censuses, surveys and national patient registries in Ireland. Statement of information practices: a document made available to service users that sets out what information the service collects; how it is used; with whom it is shared and for what purpose; the safeguards that are in place to protect it; and how service users can access information held about them. Statement of purpose: a publicly available document which succinctly captures why the national health and social care data collection exists and clearly outlines its overall function and stated objectives. It may also outline the name of the managing organisation and governance arrangements, the year of commencement, the target population, funding arrangements and legislation that it must adhere to. Survey: is an investigation about the characteristics of a given population by means of collecting data from a sample of that population and estimating their characteristics through the systematic use of statistical methodology. Catalogue of national health and social care data collections in Ireland

Health Information and Quality Authority

Page 10 of 362

Part 1. Introduction

Catalogue of national health and social care data collections in Ireland

Health Information and Quality Authority

Page 11 of 362

1 Background

1.1 National data collections

National data collections (NDCs) are national repositories of routinely collected health and social care data in Ireland. NDCs play a vital role by providing a national overview of a particular health or social care-related issue or service. The collection, use and sharing of health information is crucial to providing direct care to people using health and social care services; it is therefore essential that data is of a high quality and used to its full potential.(2) The secondary use of sharing health information, or uses beyond direct care, is also of great importance in driving improvements in health and social care systems. This relates to information collected for individual care being shared and used for other purposes. These other purposes may include the planning and management of health and social care services, the evaluation and improvement of services, and policy development and research.(2) As evident from this catalogue, from a governance perspective, the management of managing organisations are responsible for the collection and storage of these datasets, including the HSE, Government departments, and independent organisations outside of the HSE, such as the National Office of Clinical Audit (NOCA), and the Health Research Board (HRB).(2) The importance of high-quality health information has been outlined in recently published national strategy documents. In particular, the Sláintecare Implementation Strategy emphasises the importance of access to timely, relevant and high-quality underpinned by a robust approach to data collection, analysis and management.(3)

1.2 Information management standards

collections(4) are being revised and will be published in 2023. The standards aim to provide a roadmap for organisations to improve the quality of national health information and data, which will ultimately contribute to the delivery of safe and reliable healthcare. The primary objective of the standards is to improve information management practices at all levels within health and social care services including: service providers; national data collections; and at the level of the organisations with overarching responsibility for governance of information management, including the HSE and Tusla. In 2017, HIQA also commenced a review programme(5) to assess organisations against the standards. Catalogue of national health and social care data collections in Ireland

Health Information and Quality Authority

Page 12 of 362

1.3 Legislation

Recently enacted and forthcoming European-level legislation in relation to health information underlines the importance of data protection for individuals whose data is held and processed by organisations including those within the Irish health system. Such legislation includes the General Data Protection Regulation (GDPR), the Data Protection Acts 1988-2018.(6) Forthcoming legislative change in Europe includes the enactment of the Data Act and Data Governance Act. These Acts will have a significant impact on the use and sharing of health data in Ireland, and are relevant to those organisations that access and use health data and information, including the organisations that manage the collections listed in this catalogue.

1.4 Current developments in health information in Ireland and Europe

Currently in Ireland, work is being undertaken to develop new Health Information Legislation following Cabinet approval to develop the general scheme of a Health system in Ireland, that strengthens the delivery of healthcare to patients and reinforces better planning and delivery of services.(7) The Bill will also support the development of a National Health Information Centre, with an overarching goal to strive for better outcomes for patients by setting out functions and governance rules regarding the collection and processing of health information for primary and secondary use purposes.(7) In addition to the development of legislation, there are several initiatives currentlyquotesdbs_dbs50.pdfusesText_50

[PDF] catalogue isover pdf

[PDF] catalogue lit en bois pdf

[PDF] catalogue marjane casablanca

[PDF] catalogue marjane septembre 2017

[PDF] catalogue metod ikea 2017

[PDF] catalogue metro boisson

[PDF] catalogue meuble bois pdf

[PDF] catalogue pax 2016

[PDF] catalogue peinture maison pdf

[PDF] catalogue points leclerc

[PDF] catalogue renault symbol pdf

[PDF] catalogue salon moderne pdf

[PDF] catalogue tiguan 2016

[PDF] catalogue tiguan 2017

[PDF] catalogue vacaf 2017 en ligne